Title:
Newborn Screening for Sickle Cell Disease (SCD) in Nigeria : Factors Influencing Policy Decisions and Implementation
Authors:
Emeka, Enwerem Kenneth
Year:
2013
PAGE:
ix, 60
Language:
En
Subject:
mHealth in Low-Resource Settings
Keywords:
Newborn Screening, SCD, Sickle Cell Disease, Nigeria, Screening Criteria, Screening Programmes
Abstract:
Background: Newborn screening (NBS) for sickle cell disease (SCD) feasible and effective in high income countries. Introducing such programme in Nigeria (which has the highest burden of the disease) has huge potential benefits. Analysis of factors influencing its introduction is therefore crucial to ensure a successful outcome. Objective: To explore the factors influencing the introduction and/or expansion of NBS for SCD in Nigeria. Method: The model by Andermann et al[2010] on multiple influences on genetic screening policy decisions was adapted and used as a guide for the literature review. Findings: Although some favourable health policies exist, the pitfalls within Nigeria‘s health system can hamper the implementation of NBS. SCD fulfils the classical screening criteria. Although patient advocacy groups do exert a strong influence that favours introduction of NBS, government commitment is required for sustaining the programme. Ethical issues and cost-effectiveness are strong determinants in choice of screening methods i.e. universal or selective, mandatory or voluntary. Cost-effectiveness supports selective screening whereas universal screening is more equitable. Parental autonomy is guaranteed by voluntary participation whereas mandatory screening violates rights to justice, privacy and confidentiality but ensures protection of child‘s benefits against parental refusal of screening. Cultural and religious values do influence introduction of NBS. Conclusion and Recommendations: NBS can be implemented in Nigeria however it should be integrated into existing healthcare programme. Key stakeholders should be educated and should be involved at all stages of the programme in order to influence cultural, religious and ethical values in favour of NBS.
Organization:
KIT - Royal Tropical Institute
,
VU - Vrije Universiteit Amsterdam
Institute:
KIT (Royal Tropical Institute)
Department:
Development, Policy and Practice
Country:
Nigeria
Region:
Western Africa
Training:
Master of Public Health / International Course in Health Development (MPH/ICHD)
Category:
Research
Right:
© 2013 Emeka
Document type:
Thesis/dissertation
File:
8TBckswvb9_20161024150041407.pdf