Title:
Assessing the Applicability and Appropriateness of Quality of Life measurement Instruments for Children with Cerebral Palsy in Low and Middle Income Countries: A Qualitative Study
Authors:
Kesteren, Bobbi van
Place:
Amsterdam, the Netherlands
Publisher:
KIT - Royal Tropical Institute [etc.]
Year:
2023
PAGE:
ix, 58
Language:
En
Subject:
Health and Poverty
Keywords:
Cerebral palsy, children, quality of life, appropriateness applicability, measurement instruments, qualitative research and low and middle income countries.
Abstract:
Cerebral palsy is one of the major causes of childhood disability, affect ing children’s quality of life world wide. In high income countries children with cerebral palsy are a ssisted by a specialized multidisciplinary team of health care and rehabilitation professionals. L ow and middle income countries rely on other more basic sources of care , particularly family centered care and community based rehabilitation. T o evaluate t he effect of the applied interventions quality of life can be used as an outcome measure . Quality of life can be measured with generic measurement tools a s well as with disease specific measurement tools. Most of the instruments developed for measuring qu ality of life in children with cerebral palsy , are developed in high income countries. This could limit their applicability and appropriateness in low and middle income countries, which could hinder efforts to improve care and rehabilitation. Therefore , t he aim of this study was to investigate the extent to which existing quality of life measurement instruments are applicable and appropriate for evaluating quality of life in children with cerebral palsy residing in low and middle income countries.
Organization:
KIT - Royal Tropical Institute , VU - Vrije Universiteit Amsterdam
Institute:
KIT (Royal Tropical Institute)
Country:
Switzerland
Training:
Master of Science in International Health (MIH)
Category:
Research
Document type:
Thesis/dissertation
File:
l26OpjCSmb_20231106150630637.pdf