This study examined 110 patients who were tested for Factor V Leiden mutations at the Genetics Laboratory at the University of North Carolina between September 1995 and October 2001 and were older than 18 years of age (n=303). Because 107 patients were excluded for various reasons, the remaining 196 may not reflect a representative sample. Patients were asked to complete a 5-page questionnaire with quantitative and qualitative questions. 110 patients participated by returning the questionnaire.

Most were between ages 41-60 (42%) and Caucasian (92%); 46% were female, 43% had completed high school and 25% had completed college; 37% had an annual income of over $70,000 per year. Interestingly, 10% did not know why they were tested.